drugs

  • When trolls attack: an open letter to “Dora”

    Dear Dora,

    You and your ARV-loving friends at the HIVforum (Italian language forum for HIV-positives) might want to have your medications checked. Your latest public attack on a respected and admired researcher is nothing, if not irrational.

    When did you decide that you can speak for all of us who have AIDS, or who test positive for HIV?

    Your recent rant against University of Firenze (Italy) professor Marco Ruggiero, as reported at The Truth Barrier, is amazingly ill-conceived, malicious and detrimental to the well-being of all of us who are living with illness and HIV, and I am compelled to call you out.

    You have accused Ruggiero of advertising for patients to experiment with his probiotic yogurt, and you have claimed that he is putting people with HIV disease at risk by suggesting they not take their AIDS drugs. You offer no evidence that either of these allegations are true, while I can, and will, provide evidence that in fact, the opposite is the case.

  • Deja vu at the FDA

    This feels like déjà vu. Nearly thirty years ago I helped organize hundreds of AIDS activists to demonstrate at FDA headquarters in Silver Spring, MD, as well as organized die-ins at the agency’s regional headquarters here in Kansas City, to demand faster access to experimental new drugs to fight AIDS. I doubt if any…

  • Denying the AIDStream

    Some of my AIDS dissident friends reject outright the tests used by mainstream AIDS (AIDStream) doctors to evaluate ‘HIV-positive’ patients and to determine if and when to start treating them with highly active antiretroviral therapy (HAART), more commonly known as the “AIDS cocktail” of drugs.  While I agree with them that we can’t know…

  • Sucking lemons

    Kali and Bella are not impressed with the ER doctor’s compression bandage on my neck. I call it my hijab. I have sure been having second thoughts lately about publicly revealing so much about what’s going on with my health.  It was  pretty easy to write and blog when my health was improving and…