Fear of the Invisible & Alive and Well SF websites restored

 Posted by on January 4, 2014 at 9:22 pm
Jan 042014
 
Fear of the Invisible & Alive and Well SF websites restored

Janine Roberts may well be my favorite investigative reporter on the topic of AIDS and HIV. She has published several books and produced documentary films, on topics ranging from Aboriginal resistance to British colonialism in Australia, to the shame of deBeers’ diamond mining operations in Africa.

Janine has also written the much more personal story about her life as a transgendered person—The Seven Days of My Creation: Tales of Magic and Gender

The book that has most helped me form an alternative view about what the heck HIV might really be, and its role in the disease most people call AIDS is titled Fear of the Invisible.

2014: time to move on beyond AIDS dissidence

 Posted by on December 20, 2013 at 9:51 am
Dec 202013
 
2014: time to move on beyond AIDS dissidence

As the winter solstice approaches, I am aware of what a noteworthy month this December is for me, in ways that have nothing to do with the holidays. Fifteen years ago this month I was informed that I was “HIV-positive”. Five years ago, I started this blog, primarily to share my experiences with both the diagnosis, as well as previous and new health issues. I will be sharing some exciting news about some changes that will be happening to resistance is fruitful a bit later in this post.

AIDS drugs: when resistance is futile

 Posted by on December 17, 2013 at 11:07 am
Dec 172013
 
AIDS drugs: when resistance is futile

In nearly every conversation I’ve had with Affecteds who are experimenting with ways to reduce the toxicity of antiretroviral (ARV) regimens, questions about “AIDS drug resistance” comes up. Resistance is often raised as a boogeyman in research trials of monotherapy and intermittent treatment options. While drug resistance—especially bacterial antibiotic resistance to staphylococcus or tuberculosis, for example—is increasingly a problem in modern medicine, one is unlikely to hear drug resistance discussed quite the way it is with AIDS. No other pathogen is described as “sneaky”, “clever”, or more mutable than HIV, despite the fact that retroviruses do not even meet most definitions for being a living entity, let alone have a brain.

WAD marks the beginning of SAD

 Posted by on December 1, 2013 at 10:11 am
Dec 012013
 
WAD marks the beginning of SAD

Meanwhile, I have been fighting severe fatigue again, and that has led me back into that dark place called depression. I don’t want to write about that, of course. I want to write only about successes and victories. Twice last month I felt the onset of shingles in my left eye. The first time I was able to send it into remission quickly and with no evidence of an outbreak. The second time, the inflammation persisted for nearly two weeks, and I am only now feeling as if I might have kept it from erupting into a serious and disfiguring outbreak, like the one that hospitalized me in September, 2012.

AIDS dissident crosses enemy lines to find common ground

 Posted by on November 26, 2013 at 8:08 am
Nov 262013
 
AIDS dissident crosses enemy lines to find common ground

The first real bombshell dropped about six minutes into our chat, while talking about ARV drugs. Almost too casually, JTD said “I haven’t been on meds for going on 14 months now.” I had not yet publicized my own decision to start taking ARV drugs again, though I had dropped some pretty serious hints in our email exchange about “going over to the dark side”, and I was sure he knew I was planning to restart them. The irony of JTD’s comment hit me like a slap in the face. “I can’t believe that,” I told JTD, “you quit the drugs, and I’m getting ready to take them.”

This was probably the pivotal point in our conversation where my doubts and apprehensions about JTD started to soften.

Cancer scare: round two

 Posted by on November 17, 2013 at 7:31 pm
Nov 172013
 
Cancer scare: round two

Once again, the choice and the decisions are mine alone to make. I have an appointment to see a doctor I really liked at the Cancer Center of Kansas City, to get his opinion, and I will be having another blood draw for the confirmatory test.

Cancer risks aside, I am getting conflicting advice from various alternative healers about how I am dealing with chronic illness in general.

On darunavir again

 Posted by on October 30, 2013 at 7:47 am
Oct 302013
 
On darunavir again

I am dumping a lot of summary information here, without getting into details, but I need to start somewhere. When I zoom out and look at the big picture, it is clear that I am still a long way from being a “healthy” person, and frankly, I no longer expect to become one. The goal now is to mange chronic disease and maintain as good a quality of life as I possibly can.

Checking in: quit ARV drugs again

 Posted by on July 5, 2013 at 8:34 am
Jul 052013
 
Checking in: quit ARV drugs again

Gawd forbid this period of inactivity be mistaken as some sort of ill omen. What I can say is that I’m alive and doing well by most measures that matter. I am struggling with fatigue, and depression, which may help explain my absence online.

I quit the low-dose darunavir monotherapy on May 29, almost exactly one year after I had restarted ARVs. I am satisfied with, if not excited about the “numbers”, which I will update in a future post, along with additional news about my health and medical status.