living with a “positive” result on gallo’s “hiv” antibody test
Just a few days after news about Baby Rico broke among bloggers and other AIDS dissident outlets last week, AIDS researchers scrambled to find a way to push a very different story to the top of the corporate news chain this morning. “Baby Cured of AIDS” scream the headlines. No need to repeat all…
After meeting with my orthomolecular doctor last month to update him on my current status, and to discuss the goals I hope to accomplish this year, I found myself sitting in a chair in the laboratory draw station, waiting for Brad, the phlebotomist, to prepare all the paperwork necessary for the long list of…
I am getting sicker by the minute, after reading a story of horrific abuse of power by the medical establishment that broke early this morning. Tragedy has stricken a newborn infant, being held in the hospital affiliated with the Mayo Clinic, in Rochester, Minnesota. A court ordered that Rico Martinez Nagel be removed from…
I mentioned in my last post that I frequently get messages from people, asking about something I’ve shared, or sharing their own story. A few days ago, I received just such an email from a person I’ve never met, but who I’ve come to know fairly well online, and we continued the exchange through…
Today is Valentine’s Day, and I am sitting in a motel room in Wichita, Kansas, pondering: how do I dare ask friends, family and strangers to give me money so I can continue to experiment with alternative health therapies? The painful answer is: I have no choice, but to try. I left KC at…
I first learned of ultraviolet blood irradiation (UBI) a few months ago from a mutual friend. UBI is also known as extracorporeal photopheresis (ECP) in the medical literature, and most recently BioPhotonic Therapy and Photoluminescent Therapy. Photopheresis been around for more than a century, and started gaining attention in medical circles as early as 1902. Like many alternative protocols, the spectacular success of antibiotics to fight battle field infections in WWII captured the hearts and minds of physicians and started the West’s love affair with pharmaceutical solutions to disease.
Today, as best as I can tell, UBI is approved by the FDA for only two purposes: cutaneous t-cell lymphoma and graft-vs-host disease. It’s use is far more widespread in Europe, Russia, China and South America for a variety of conditions, though it is currently being studied in the U.S. as an alternative treatment or adjunctive treatment for malignancies, auto-immune disorders, and yes, AIDS.
UPDATE April 29,2012 This is a rewrite of a post I made almost two weeks ago. After exchanging a series of emails, followed by a more than hour-long sincere telephone conversation with JTD yesterday afternoon, I am now convinced that the comments posted below were not made by him. It is past time to…
Enough already with the critics and detractors. I haven’t been doing a very good job lately of keeping current with documenting my personal story, which was and is one of the primary purposes of this blog.
Despite the gruesome pictures from an earlier post, I am not currently experiencing any horribly disfiguring outbreaks, lumps or other obvious manifestations of poor health. The skin on my left leg has healed nicely and is completely intact, with no breaks, scabs or sores, for the first time in more than a year. The mystery lump on the right side of my face, under my jaw, has shrunk considerably, though I can still detect it. My smile is still crooked, due to what I assume is now permanent facial nerve damage resulting from Bell’s palsy. I also have a few persistent skin sores on my shoulders and back that are resisting healing.
I can fall asleep anywhere, anytime.
Other than these minor nuisances, my body seems fine, for the most part, and people who have known me for some time, assure me that I “look good”. What is not so obvious is the extreme fatigue (the F-word),
I previously reported that the recent attacks on Marco Ruggiero’s academic freedom have been instigated, at least in part, by a known Internet troll who goes by various names, including “Snout”. Most of us involved in AIDS questioning are familiar with this nom de plume. Snout is a frequent contributor to comment threads all over the Internet, as a simple Google search will yield well over 2 million hits for “snout + aids + denialists”. Snout also blogs at a site called Reckless Endangerment, which has an Alexa website ranking of about 25M; in other words, he has very few followers, especially considering his tenacity.
Dear Dora,
You and your ARV-loving friends at the HIVforum (Italian language forum for HIV-positives) might want to have your medications checked. Your latest public attack on a respected and admired researcher is nothing, if not irrational.
When did you decide that you can speak for all of us who have AIDS, or who test positive for HIV?
Your recent rant against University of Firenze (Italy) professor Marco Ruggiero, as reported at The Truth Barrier, is amazingly ill-conceived, malicious and detrimental to the well-being of all of us who are living with illness and HIV, and I am compelled to call you out.
You have accused Ruggiero of advertising for patients to experiment with his probiotic yogurt, and you have claimed that he is putting people with HIV disease at risk by suggesting they not take their AIDS drugs. You offer no evidence that either of these allegations are true, while I can, and will, provide evidence that in fact, the opposite is the case.
This site is no longer updated, but kept online for reference. You should not see this popup notice on future visits.
While much of the information on this site is no longer current, it represents almost a decade of my life. It was a period of considerable reflection and writing was my therapy.
I have moved on from that era and am now moving into what will undoubtedly be the last chapter of my life. My love for writing and telling stories-mine, as well as those of others-goes with me. Join me, if you will, at jondbarnett.com for the adventure.
