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Nope, I’m not dead yet

keep-calm-i-m-still-alive-9Glancing at the statistics for my blog and other sites I manage has become a habit for me most days. While I used to fixate on these numbers, I’ve learned to take them with a grain of salt since discovering how imprecise they are and how vulnerable they can be to manipulation.

Still, it is interesting to watch the ebb and flow of interest in particular articles and topics. The most common search terms are from Affecteds seeking information about living with a positive HIV diagnosis without resorting to antiretroviral drugs; quitting the drugs; or finding alternatives to them. Emery Taylor’s story  is also a big draw—the top search term this year. MAF 314 and Carl Stryg round out the top 5 stories of interest so far for 2015.

Sometimes I learn more about the impact of what I do online from watching the search terms than I do from the raw traffic numbers, and that was the case when I noticed that yesterday someone must have been thinking about me.

still alive screen

Who and why did someone type “jonathan barnett resistance dead?” into a Google search?

Was is it someone who had been missing my thoughtful, creative and witty writings? Someone thinking, or worse yet, hoping I must have died because they assumed I was still not taking drugs for HIV? Could it have been someone wondering, or worse yet, hoping I had surely died because I did start taking ARVs (at greatly reduced dosages) again?

Was it my private disability insurance company checking in to make sure my partner is committing fraud?

Who are you and why do you care if I’m dead or alive? What would you do with the information if I had, for any reason died recently? I can’t deny I’m not a bit curious.

Whoever the person is, they must not use Facebook, or check-in at the Forums at Questioning AIDS. It’s not difficult at all to see I’ve been active on both sites this year, even if I haven’t been in the mood to do a lot of writing on my personal blog for awhile.

I’m not going to lose any sleep pondering this for long, but admit I did find it curious. I’ll just take this opportunity to write a brief post just to let the anyone who is interested know that I’m not dead. Indeed, I’m much too busy living and working on home improvement projects, to want to spend a lot of time at the computer. Now that Spring is here, no doubt the yard and bicycle and Camp Gaea will also be attracting more of my attention, but don’t worry, I will be back to update everyone about my latest mad experimentation… when I feel like doing so.

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  • 97

    97. That’s my latest CD4+ count, less than half the count from six weeks ago.

    That’s it. I have tried as many alternative treatments as I can think of to reverse the decline. I will be starting my third round of pharmaceutical ARVs as soon as I can get a prescription and fill it.

    This decision has been a long time coming, and in hindsight, I probably should have restarted a few months ago. There’s nothing magical about 97, or being below 100, but it’s as good a breaking point as any. I’ve long argued that there are two things to keep in mind about CD4 counts: one is the long-term trend; the other is single- or low double-digit counts.

  • By any other name

    A whole year?! It’s hard to believe that it has been more than a year since I’ve written anything on my blog. I don’t even know how to begin to catch up. I blame Facebook, mostly. I’ve been addicted to the lightning-fast pace of information exchange there, and I’ve written hundreds, maybe even thousands of posts and…

  • Reduce AIDS drug toxicity and side effects

    I embarked on my third course of ARVs since 1998. For ten of the sixteen years I have been HIV-positive, I was able to manage well enough without ARVs and I continue to believe there is no reason for otherwise healthy HIV-positive—let alone negative—gay men to take these drugs. To those who want to wave a recent study about the benefits of early intervention in my face, I would ask them why they put so much faith in a science that has utterly failed us to date.

  • Retreat and Adventure — Midwest Men’s Festival

    When I received my HIV diagnosis in 1998, I withdrew from my community of gay men. I “went to ground”, thinking that isolation was the only safe place to avoid being criticized for seroconverting at such a late date, when we were all supposed to know better.

    This past week has been yet another bifurcation point in my life. I returned to a community I have known about, if not been a steady part of, for more than 30 years. A community of men whom I could touch and hug. Men whose tears might wet my face and whose body heat and life forces I could feel in ways that can only happen in person. It really did feel like coming home.

2 Comments

  1. Keep doing YOU! John. At the end, all said and done, it’s YOUR Life! Live it the way u see it fit. The negative peeps are most certainly doing what they wanna do, good or bad.

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