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By any other name

Kansas City Times profile.
Profiled in Kansas City Times, May 8, 1989
as Jon D. Barnett.

A whole year?!

It’s hard to believe that it has been more than a year since I’ve written anything on my blog. I don’t even know how to begin to catch up.

I blame Facebook, mostly. I’ve been addicted to the lightning-fast pace of information exchange there, and I’ve written hundreds, maybe even thousands of posts and at least a few Facebook “Notes” (longer, blog-like articles), some of which might have been good candidates for blog posts.

But Facebook isn’t a blogging platform. It isn’t a good community forum platform. It is a horrible political organizing platform.

Despite all those liabilities Facebook has become the go-to place for these things. It’s become the primary source of information for a lot of people. I’m not leaving Facebook, but I do want to return to my own little personal piece of the Internet: my blog.

I get messages from readers with questions about my health, and what I’m doing about anti-retroviral drugs (I’m taking them). You will have to wait a bit longer, but I promise to get around to sharing more information about those matters soon.

Resistance Is Fruitful started out as a place for me to write about my experience of living with a positive HIV diagnosis since 1998 and the chronic health issues I have experienced; some of them long before that date. While I have written on other topics here, the blog hasn’t felt like the right place to write about miscreant public figures, for example or how to change our political system. I dabbled with writing at another site, but it was not very user-friendly for the kind of writing I want to do, especially long form.

Other interests

I’ve grown less and less fixated on the HIV=AIDS question the last couple of years. Not because I’ve discovered satisfactory answers, but because it has become obvious to me that many of the questions I have will not be answered anytime soon, and meanwhile, I have a life to live.

The latest health problem challenging me is chronic pain resulting from spinal damage caused by a fall. It’s taken too many weeks to get a diagnosis, thanks in part to a couple of bouts of kidney stones that confusticated things, and now a long wait of several weeks just to get  a “new patient” appointment with a specialist. I don’t expect a speedy resolution, but at least I should have more information later this week.

There is a group of men who spend ten days a year experimenting with intentional community that I want to be involved with. The Midwest Men’s Festival starts in just a couple of days, but before I go, I need to see the orthopedic surgeon and decide how much I can take part in that with my (hopefully temporary)  limited mobility.

I have a home that is slowly transforming into our castle for my partner and myself. I’d like to think that I’m a great “idea man,” and I have started projects from one end of this place to the other. Those who know me well know that completing tasks is not my strong suit. One of my favorites phrases is “substantially complete.”

My aging, 93-year-old mother has never been closer to her own end of life, but it’s not clear yet if that is weeks or months or years away. I feel a need to spend more time visiting her in Colorado, but again, pain and limitations in mobility thwart me.

I became a statewide delegate for Bernie Sanders’ presidential campaign in April. That consumed a lot of my attention and energy, and has ignited a progressive political movement in Missouri. That’s what I’ve mostly been writing about elsewhere the summer.

I could go on, but you get the picture. Each of us is a multi-faceted person and I am no exception. I want a writing platform that better reflects those various aspects of who I am, so I will be moving to a new domain and website. What hasn’t changed is that I still want to tell stories—my own and those of others who are willing to share with me. Of all the things I’ve done in my lifetime, writing has been one of the most consistent and rewarding hobby I have.

The new name: Jon D Barnett

The new website isn’t quite ready for prime time yet, and it is not yet being indexed by search engines, but it is being built. I want a fresh start, without losing the value of what has gone before. All of the posts I’ve written to date will remain, but content will be organized a bit differently.

Yard sign from 1991 city council race.
Yard sign from 1991 city council race.

I am also changing my byline. For most of my life up until 1999 or so, I used the name Jon D Barnett. No one called me Jonathan when I was growing up. That name seemed needlessly long and awkward. My dad, Victor D Barnett, was known as Vic and he always included his middle initial in his signature. I mimicked that for myself. Jon D Barnett is the name I used to run for city council in 1991 and was my byline on articles I wrote for the News-Telegraph throughout the 1990s.

I started using Jonathan more consistently when I tested positive for HIV in 1998 and consummated that switch when I became eligible for disability in 2004. It is the name on my Social Security and Medicare cards, and I didn’t want medical clerks confusing the system by misspelling Jon as John. I was in a huge state of flux, so embracing a new moniker that was also my oldest name seemed appropriate. It served as the marker for a bifurcation point in my life. It was some sort of poorly understood, let alone defined, action on my part to claim a new identity following a dramatic—no, let’s be honest—a traumatic life change.

There are other Jonathan Barnetts out there, including a retired Arkansas state representative; a successful sports agent; the founder of Oxi Fresh carpet cleaning; an accomplished author and retired emeritus professor of urban planning and design; and perhaps most conspicuous, an architect and outspoken skeptic regarding the 9/11 World Trade Center attacks.

That’s a lot of name competition!

A few weeks ago I turned 60, another significant life event for me, and I hope it will prove to be yet another significant pivoting point in my life. I loved how people I have met for the first time in the new circles I have found myself in intuited that those closest to me called me Jon. I have been pondering whether I wanted to go back to using that shortened version of my name for months now. As has been my experience so often in my life to date, serendipity stepped in and settled the question for me. Do you know how hard it is to find good domain names? Imagine my surprise to find that jondbarnett.com was not only available, but on sale for a few bucks.

Of course, there is another Jon D Barnett in Kansas City that I hope not to get confused with. He is 33-years-old and listed on the sexual offender list. That Barnett was charged with “indecent liberties” against a 14-year-old girl when he was…. get this…. 15-years-old! And that right there is another story of injustice that I really want to write about, but it will just have to wait.

Wait... there's more!

  • Reduce AIDS drug toxicity and side effects

    I embarked on my third course of ARVs since 1998. For ten of the sixteen years I have been HIV-positive, I was able to manage well enough without ARVs and I continue to believe there is no reason for otherwise healthy HIV-positive—let alone negative—gay men to take these drugs. To those who want to wave a recent study about the benefits of early intervention in my face, I would ask them why they put so much faith in a science that has utterly failed us to date.

  • Retreat and Adventure — Midwest Men’s Festival

    When I received my HIV diagnosis in 1998, I withdrew from my community of gay men. I “went to ground”, thinking that isolation was the only safe place to avoid being criticized for seroconverting at such a late date, when we were all supposed to know better.

    This past week has been yet another bifurcation point in my life. I returned to a community I have known about, if not been a steady part of, for more than 30 years. A community of men whom I could touch and hug. Men whose tears might wet my face and whose body heat and life forces I could feel in ways that can only happen in person. It really did feel like coming home.

  • Supplemental autopsy for Gos Blank: PCP detected

    Nearly four months after his death, and a couple of months after the “final” autopsy report was released, Gos Blank’s wife, Lisa, receive additional information in the form of a letter with the subject: “Supplemental Final Diagnoses”. According to this update, dated February 11, 2014, a stain revealed the “presence of multiple cup and/or boat shaped fungal cysts located within foamy amorphous matériai within the alveolar spaces which were characteristic of Pneumocystis jirovecii microorganisms.

  • Planting Peace ‘virtual pizza’ campaign to shelter homeless LGBTQ

    I keep asking myself what does it mean when “they” can raise nearly a million dollars in a few days for an anti-gay cause that benefits only one family, while the LGBTQ community and our allies have to beg and scrap to raise an obviously modest amount of money, when considered in the bigger picture.

    I am also wondering why no one with a media presence and stature comparable to Glenn Becks has stepped up to champion this initiative. Some of the names that come to mind are: Rachel Maddow, Ricky Martin, Ellen Degeneres or George Takei.

  • Nope, I’m not dead yet

    Who and why did someone type “jonathan barnett resistance dead?” into a Google search?

    Was is it someone who had been missing my thoughtful, creative and witty writings? Someone thinking I must have died from not taking drugs for HIV? Someone wondering if I had died yet because I had started taking ARVs (at greatly reduced dosages) again?

  • Four years on — Gilead gets its way

    What troubles me is the apparent willingness of an entire community to consider embracing Truvada as some sort of symbol of sexual freedom… evidenced by charges that those of us who are skeptical are guilty of being sex-negative and “slut-shaming”.

    All of this on the basis of research that has been manipulated and twisted by Gilead to create a false reality of safety.

    I’m resigned to the fact that Truvada as PrEP is here, regardless of what I or others fear. Now it’s mostly a question of time to see it PrEP meets the expectations of sexually active gay men…. and Gilead shareholders. The former is yet to be proven; the latter is a foregone conclusion.

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