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I really, really, don’t care what causes AIDS

Once in a while I come across a piece of writing that resonates so closely with my own experiences that I want to say “I wish I had written that”.

Carl Stryg wrote just such an essay recently, published at The Truth Barrier, a website founded by journalist Celia Farber. From the first paragraph, Stryg has me hooked:

I, personally, have lost count of the friends who I have watched shrivel-up and die over the years — all of them so young — since this dark, bewildering cloud of sickness blew into all of our lives. I feel shell-shocked and exhausted from the sheer numbers. Looking back, I think death stopped meaning anything to me years ago.

Like Stryg, I lost dozens of friends and probably hundreds of acquaintances in the 1980s and 1990s.  My entire extended family of gay men was decimated and I withdrew from the endless grief of funerals and memorial services as much as possible.

Every one of these friends died in their 30s, which makes the notion of 10+ year incubation periods and life-extending drugs pretty unbelievable.  I’ve posted a listing of some of the dead on a page of my blog I call “the graveyard“.  All but one of them faithfully took their anti-retrovirals, including the highly touted protease inhibitors when those became available.

Johnny Gutierrez

The one exception that I know of, a sweet and lovable young friend named Johnny Gutierrez, was an alcoholic and addicted to crack and gawd only knows what else.  Johnny tried to take his AIDS drugs until the free health clinic denied him prescriptions due to “non-compliance”.

Johnny was haunted by his diagnosis and was terrified of a living death, which is exactly how his life ended, his spiritless body kept alive by machines at Truman Medical Center for more than 48 hours because his family didn’t want to pull the plug on Valentine’s Day.

Stryg addresses the conflict I feel about people taking ARVs to treat minor health problems seemingly associated with a positive test result on the polyreactive Gallo antibody test (aka the AIDS test):

One thing is absolutely clear to me: I have never met even one HIV positive person who felt healthy whose quality of life was improved by HIV drugs. What benefit there may be is certainly limited to those very near death, in my experience.

Where Stryg really lets loose is when he addresses the reaction of the mainstream AIDS establishment to anyone who questions the current state of knowledge about this disease or options for treating it.  Their use of the term “denialist” to describe us, for example.  Instead of engaging in honest and transparent dialogue, some of those who make a living promoting pharmaceutical-backed theories resort to historically obvious propaganda techniques of discrediting questioners by villifying and ostracizing them.

Funny how AIDS reappraisers who ask for transparency and dialogue, or warn of the shortcomings or dangers of HIV treatments are accused of causing unnecessary AIDS deaths. Strange that when someone dies after years of choosing not to take HIV drugs, fingers are immediately pointed at the AIDS denialists. And yet, when a patient dies after 2 or 6 or 12 years on HIV treatments, the AIDS Police speak of the extra few years treatment ‘gave’ the patient. Curiously, these self-described ‘life-savers’ accept no responsibility for those who died from high-dosage, experimental AZT monotherapy in the 1980’s, or those whose entire skin ‘detaches’ while on AIDS drugs like Nevirapine. I don’t see them clamouring to confess their guilt. I hear no cries of ‘Murderer’! I guess it’s just collateral damage to them. ‘We did our best’. So one-sided. So self-serving. Well. It seems their Ivory Towers are built much higher than I ever imagined.

The main point Stryg is trying to make is summed up nicely near the end of his essay, which I hope you take the time to go read in full:

Frankly, in the end, I really, really don’t care what causes AIDS. I just want people to stop suffering and dying from whatever it is… Looking at the pathetic, toxic fruits of HIV research, is it any wonder people look beyond it for help? Perhaps the AIDS Police shout so shrilly to distract us from their shame at having failed to cure even one patient in 25 years? Can you imagine the fuss if Cancer research had failed to yield a cure for even one case? Can you even imagine? In my view these people have nothing to brag about and shouldn’t be pointing fingers at anyone. They might more appropriately beg forgiveness for their massive failure. These are the same people who trumpeted to the world that there would be a Vaccine by 1990. I don’t know about your friends, but my friends are still dying.

Please click here to read the entire essay (no longer available at The Truth Barrier.

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  • 97

    97. That’s my latest CD4+ count, less than half the count from six weeks ago.

    That’s it. I have tried as many alternative treatments as I can think of to reverse the decline. I will be starting my third round of pharmaceutical ARVs as soon as I can get a prescription and fill it.

    This decision has been a long time coming, and in hindsight, I probably should have restarted a few months ago. There’s nothing magical about 97, or being below 100, but it’s as good a breaking point as any. I’ve long argued that there are two things to keep in mind about CD4 counts: one is the long-term trend; the other is single- or low double-digit counts.

  • Reduce AIDS drug toxicity and side effects

    I embarked on my third course of ARVs since 1998. For ten of the sixteen years I have been HIV-positive, I was able to manage well enough without ARVs and I continue to believe there is no reason for otherwise healthy HIV-positive—let alone negative—gay men to take these drugs. To those who want to wave a recent study about the benefits of early intervention in my face, I would ask them why they put so much faith in a science that has utterly failed us to date.

  • The truth about Truvada: PrEP won’t stop AIDS

    I’m willing to grant that gay men are entitled to use PrEP… provided they have access to all the information they need to make an informed decision. Informed consent has been a hallmark of the HIV and AIDS research and prevention efforts for three decades, and that shouldn’t be waived for the campaign favoring PrEP.

    Gay men deserve to know that all the claims for Truvada reducing the risk of acquiring HIV-positivity  are based on trials—funded by Gilead—that emphasized the importance of using condoms…

  • Confessions of a heretic AIDS dissident

    You might not know it from reading the comments left here on my blog, but there are more than a few AIDS dissidents who really don’t like how I think or what I write about.

    There’s a whole thread on a very popular Facebook page called “Rethinking AIDS”, discussing my open letter to Dora. Last I looked, that thread had nearly 100 comments, and very few of those comments were about Dora, Ruggiero or the defense of academic freedom.

    No, the gist of the thread was whether or not I am in “the AIDS Zone.” It seems that because I did not use “air quotes” around the term “HIV disease”, I’m not really an AIDS dissident. Others took issue with my post for daring to publish that some AIDS Rethinkers hold a very narrow view about “HIV” and “AIDS”, while others of us are merely “questioning” the whole affair. None of them chose to comment directly to me here.

    Some of the most visible and vocal Rethinkers seem intent on imposing their own “beliefs” (another loaded term that deserves quotes) on the entire movement. There has long been a tendency to try to impose a sort of litmus test to determine whether or not one is a true “AIDS dissident”.

    Since I first met the AIDS dissident community via the AIDS Myth Exposed forums—since renamed Questioning AIDS—several years ago, I’ve become aware of several of the various factions, distinctive personalities and divisions within that broad group. Now I’m finding it ironic just how guilty some of these people are at their own version of “bone-pointing”.

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