I just got word that the Rector of the University of Firenze has vindicated Marco Ruggiero of all charges of improper conduct. I reported on this controversy in a couple of earlier posts (here and here). Anonymous and out-of-control AIDS drug apologists initiated an online smear campaign to discredit Ruggiero’s research efforts. Fortunately, calmer minds […more]
I know, I know… it’s been more than two months since I’ve blogged, but that doesn’t mean something’s wrong. Oh, there was that nasty summer head cold a couple of weeks ago, but otherwise I’m doing fine. I’m not ready yet to publicize what I’m doing medically, or what the results are. I’m trying to […more]
97. That’s my latest CD4+ count, less than half the count from six weeks ago.
That’s it. I have tried as many alternative treatments as I can think of to reverse the decline. I will be starting my third round of pharmaceutical ARVs as soon as I can get a prescription and fill it.
This decision has been a long time coming, and in hindsight, I probably should have restarted a few months ago. There’s nothing magical about 97, or being below 100, but it’s as good a breaking point as any. I’ve long argued that there are two things to keep in mind about CD4 counts: one is the long-term trend; the other is single- or low double-digit counts.
I first learned of ultraviolet blood irradiation (UBI) a few months ago from a mutual friend. UBI is also known as extracorporeal photopheresis (ECP) in the medical literature, and most recently BioPhotonic Therapy and Photoluminescent Therapy. Photopheresis been around for more than a century, and started gaining attention in medical circles as early as 1902. Like many alternative protocols, the spectacular success of antibiotics to fight battle field infections in WWII captured the hearts and minds of physicians and started the West’s love affair with pharmaceutical solutions to disease.
Today, as best as I can tell, UBI is approved by the FDA for only two purposes: cutaneous t-cell lymphoma and graft-vs-host disease. It’s use is far more widespread in Europe, Russia, China and South America for a variety of conditions, though it is currently being studied in the U.S. as an alternative treatment or adjunctive treatment for malignancies, auto-immune disorders, and yes, AIDS.
UPDATE April 29,2012 This is a rewrite of a post I made almost two weeks ago. After exchanging a series of emails, followed by a more than hour-long sincere telephone conversation with JTD yesterday afternoon, I am now convinced that the comments posted below were not made by him. It is past time to end […more]
I just did something I almost never do: deleted a post. It hadn’t been up very long, but it did make it out on the feed readers. It was an announcement that I was going to beta test a new service called wizpert, which wanted me to make myself available online, via Skype, as an […more]
Enough already with the critics and detractors. I haven’t been doing a very good job lately of keeping current with documenting my personal story, which was and is one of the primary purposes of this blog.
Despite the gruesome pictures from an earlier post, I am not currently experiencing any horribly disfiguring outbreaks, lumps or other obvious manifestations of poor health. The skin on my left leg has healed nicely and is completely intact, with no breaks, scabs or sores, for the first time in more than a year. The mystery lump on the right side of my face, under my jaw, has shrunk considerably, though I can still detect it. My smile is still crooked, due to what I assume is now permanent facial nerve damage resulting from Bell’s palsy. I also have a few persistent skin sores on my shoulders and back that are resisting healing.
I can fall asleep anywhere, anytime.
Other than these minor nuisances, my body seems fine, for the most part, and people who have known me for some time, assure me that I “look good”. What is not so obvious is the extreme fatigue (the F-word),
I guess I’m not the only person who has missed J Todd DeShong’s great blog, dissidents4dumbees. It is often referred to fondly in the comment threads at Seth Kalichman’s blog, Denying AIDS and other oddities. In fact, that’s where JTD and all of the anonymous gang members who used to populate D4D’s comment threads now hang out:
You might not know it from reading the comments left here on my blog, but there are more than a few AIDS dissidents who really don’t like how I think or what I write about.
There’s a whole thread on a very popular Facebook page called “Rethinking AIDS”, discussing my open letter to Dora. Last I looked, that thread had nearly 100 comments, and very few of those comments were about Dora, Ruggiero or the defense of academic freedom.
No, the gist of the thread was whether or not I am in “the AIDS Zone.” It seems that because I did not use “air quotes” around the term “HIV disease”, I’m not really an AIDS dissident. Others took issue with my post for daring to publish that some AIDS Rethinkers hold a very narrow view about “HIV” and “AIDS”, while others of us are merely “questioning” the whole affair. None of them chose to comment directly to me here.
Some of the most visible and vocal Rethinkers seem intent on imposing their own “beliefs” (another loaded term that deserves quotes) on the entire movement. There has long been a tendency to try to impose a sort of litmus test to determine whether or not one is a true “AIDS dissident”.
Since I first met the AIDS dissident community via the AIDS Myth Exposed forums—since renamed Questioning AIDS—several years ago, I’ve become aware of several of the various factions, distinctive personalities and divisions within that broad group. Now I’m finding it ironic just how guilty some of these people are at their own version of “bone-pointing”.
I previously reported that the recent attacks on Marco Ruggiero’s academic freedom have been instigated, at least in part, by a known Internet troll who goes by various names, including “Snout”. Most of us involved in AIDS questioning are familiar with this nom de plume. Snout is a frequent contributor to comment threads all over the Internet, as a simple Google search will yield well over 2 million hits for “snout + aids + denialists”. Snout also blogs at a site called Reckless Endangerment, which has an Alexa website ranking of about 25M; in other words, he has very few followers, especially considering his tenacity.