Today is Valentine’s Day, and I am sitting in a motel room in Wichita, Kansas, pondering: how do I dare ask friends, family and strangers to give me money so I can continue to experiment with alternative health therapies? The painful answer is: I have no choice, but to try. I left KC at 4 […more]
During our last office visit a couple of months ago, the infectious disease specialist I am now seeing repeatedly referred to “The Guidelines”, as if they were some kind of Holy Grail for treating her patients. The guidelines she was referring to are actually several documents, published by the U.S. Department of Health and Human […more]
Here’s another short outtake from the pre-show walkthrough that John Grosso and I had in a G+ Hangout On Air (HOA) earlier this week for tomorrow evening’s Rainbow Show. Live stream begins at 7 pm CST. Please drop in to view the show live, and ask questions via the comment stream on YouTube or Google+. The […more]
97. That’s my latest CD4+ count, less than half the count from six weeks ago.
That’s it. I have tried as many alternative treatments as I can think of to reverse the decline. I will be starting my third round of pharmaceutical ARVs as soon as I can get a prescription and fill it.
This decision has been a long time coming, and in hindsight, I probably should have restarted a few months ago. There’s nothing magical about 97, or being below 100, but it’s as good a breaking point as any. I’ve long argued that there are two things to keep in mind about CD4 counts: one is the long-term trend; the other is single- or low double-digit counts.
I’m still trying to wade through the results of several tests that have been done, and I summarize some of the important things I’ve discovered in a youtube video. While I have a lot of new information, I don’t necessarily have the answers yet, just more questions. At least I now have a better idea […more]
As I have reported previously, high dose intravenous vitamin C seems to improve my energy, my mood and my sense of well-being, if not the laboratory markers often associated with HIV and AIDS. Because the infusions are so expensive, I was intrigued by the possibility of preparing my own IV sodium ascorbate ala Dr. Robert […more]
This feels like déjà vu. Nearly thirty years ago I helped organize hundreds of AIDS activists to demonstrate at FDA headquarters in Silver Spring, MD, as well as organized die-ins at the agency’s regional headquarters here in Kansas City, to demand faster access to experimental new drugs to fight AIDS. I doubt if any of […more]
Note: I’d like to welcome those of you visiting this site from the forums at aidsmed.com. This may be the first time that a mainstream AIDS site has referred to this blog as a “clear-eyed ‘alternative hypothesis’ site,” and I’m flattered. Given that, I hope you will look around a bit. A good place to […more]
I’ve fallen behind on sharing quite a bit of information about my recent medical adventures. I don’t know where to begin, or how much to divulge publicly. Not out of concerns for privacy—I’ve chosen to be an open book about my experiences—but because I don’t want to bore folks with the myriad of details. If […more]
Some of my AIDS dissident friends reject outright the tests used by mainstream AIDS (AIDStream) doctors to evaluate ‘HIV-positive’ patients and to determine if and when to start treating them with highly active antiretroviral therapy (HAART), more commonly known as the “AIDS cocktail” of drugs. While I agree with them that we can’t know for […more]