fatigue

  • Checking in: quit ARV drugs again

    Gawd forbid this period of inactivity be mistaken as some sort of ill omen. What I can say is that I’m alive and doing well by most measures that matter. I am struggling with fatigue, and depression, which may help explain my absence online.

    I quit the low-dose darunavir monotherapy on May 29, almost exactly one year after I had restarted ARVs. I am satisfied with, if not excited about the “numbers”, which I will update in a future post, along with additional news about my health and medical status.

  • Join me on my journey

    Today is Valentine’s Day, and I am sitting in a motel room in Wichita, Kansas, pondering: how do I dare ask friends, family and strangers to give me money so I can continue to experiment with alternative health therapies? The painful answer is:  I have no choice, but to try. I left KC at…

  • The F word

    Enough already with the critics and detractors. I haven’t been doing a very good job lately of keeping current with documenting my personal story, which was and is one of the primary purposes of this blog.

    Despite the gruesome pictures from an earlier post, I am not currently experiencing any horribly disfiguring outbreaks, lumps or other obvious manifestations of poor health. The skin on my left leg has healed nicely and is completely intact, with no breaks, scabs or sores, for the first time in more than a year. The mystery lump on the right side of my face, under my jaw, has shrunk considerably, though I can still detect it. My smile is still crooked, due to what I assume is now permanent facial nerve damage resulting from Bell’s palsy. I also have a few persistent skin sores on my shoulders and back that are resisting healing.

    I can fall asleep anywhere, anytime.

    Other than these minor nuisances, my body seems fine, for the most part, and people who have known me for some time, assure me that I “look good”. What is not so obvious is the extreme fatigue (the F-word),

  • The numbers game

    I’m still trying to wade through the results of several tests that have been done, and I summarize some of the important things I’ve discovered in a youtube video. While I have a lot of new information, I don’t necessarily have the answers yet, just more questions.  At least I now have a better…