Frankly, in the end, I really, really don’t care what causes AIDS. I just want people to stop suffering and dying from whatever it is. It appalls me deeply that after all the hundreds of billions of dollars in research — possibly more than that spent on researching all other microbes combined — HIV research has ‘succeeded’ only in giving patients the horrifying choice between either dying slowly of Opportunistic Infections associated with a damaged immune system, or dying slowly of Liver Failure or having your skin peel off or maybe a Heart Attack caused by HIV drugs themselves. All the while ignoring the patients who do just fine for rather a long time when left to pursue their lives unmolested. So pick your death.
-Carl Stryg
Once again, the choice and the decisions are mine alone to make. I have an appointment to see a doctor I really liked at the Cancer Center of Kansas City, to get his opinion, and I will be having another blood draw for the confirmatory test.
Cancer risks aside, I am getting conflicting advice from various alternative healers about how I am dealing with chronic illness in general.
One of the most vexing issues I’ve had to deal with since I started exploring alternatives to ART (antiretroviral therapy) for keeping my immune system as healthy as I can, is my inability to abide by some of the most basic rules of scientific research. I’m not beating myself up too much for this failure, […more]
Rarely a day goes by that I do not scan the headlines collected from various blogs and sources by Google Reader. Smashing a recent lull in AIDS news, some pretty outrageous headlines have been breaking through lately. Last week, it was Baby AZeTa, the little girl in Mississippi who researchers claimed was cured of AIDS […more]
Just a few days after news about Baby Rico broke among bloggers and other AIDS dissident outlets last week, AIDS researchers scrambled to find a way to push a very different story to the top of the corporate news chain this morning. “Baby Cured of AIDS” scream the headlines. No need to repeat all the […more]
After meeting with my orthomolecular doctor last month to update him on my current status, and to discuss the goals I hope to accomplish this year, I found myself sitting in a chair in the laboratory draw station, waiting for Brad, the phlebotomist, to prepare all the paperwork necessary for the long list of tests […more]
I mentioned in my last post that I frequently get messages from people, asking about something I’ve shared, or sharing their own story. A few days ago, I received just such an email from a person I’ve never met, but who I’ve come to know fairly well online, and we continued the exchange through yesterday. […more]
During our last office visit a couple of months ago, the infectious disease specialist I am now seeing repeatedly referred to “The Guidelines”, as if they were some kind of Holy Grail for treating her patients. The guidelines she was referring to are actually several documents, published by the U.S. Department of Health and Human […more]
Here’s another short outtake from the pre-show walkthrough that John Grosso and I had in a G+ Hangout On Air (HOA) earlier this week for tomorrow evening’s Rainbow Show. Live stream begins at 7 pm CST. Please drop in to view the show live, and ask questions via the comment stream on YouTube or Google+. The […more]
Enough already with the critics and detractors. I haven’t been doing a very good job lately of keeping current with documenting my personal story, which was and is one of the primary purposes of this blog.
Despite the gruesome pictures from an earlier post, I am not currently experiencing any horribly disfiguring outbreaks, lumps or other obvious manifestations of poor health. The skin on my left leg has healed nicely and is completely intact, with no breaks, scabs or sores, for the first time in more than a year. The mystery lump on the right side of my face, under my jaw, has shrunk considerably, though I can still detect it. My smile is still crooked, due to what I assume is now permanent facial nerve damage resulting from Bell’s palsy. I also have a few persistent skin sores on my shoulders and back that are resisting healing.
I can fall asleep anywhere, anytime.
Other than these minor nuisances, my body seems fine, for the most part, and people who have known me for some time, assure me that I “look good”. What is not so obvious is the extreme fatigue (the F-word),